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Hughes Disease / Sticky Blood - DSE Assessment
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Posted By Simon Sexton
Hi all,
I'm a bit of a newbie to this place so excuse me if I do not follow etiquette.
I have a User who has recently been diagnosed with Hughes Disease aka Sticky Blood. The condition increases the risk of the blood clotting leading to increased risk of DVT and Heart Attach/Stroke.
The User is a heavy DSE user and I am due to assess both his home and office workstation today and Friday.
I'd appreciate your feelings on what can be done to minimise the risk posed. The User's doctor has simply said "get a DSE assessment done" in that ever helpful tone that would be at home on a football pitch.
I'm of the opinion that I go down the same route as with expectant mothers e.g. Slightly raise legs to minimise pressure on the back of the thigh and recommend regular "stand up and walk around" breaks - every 40-60mins plus regular postural changes - Does anyone think such breaks should be more frequent?
Has anyone had any specific experience of this condition and its effects on DSE use? This User also suffers from Lupus but having read countless articles on the condition I can see no relevance of Lupus to a DSE assessment - correct me if I'm wrong...
Thanks in anticipation of your replies.
Simon
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Posted By Lilian McCartney Hi Simon, I looked this up on NHS Direct which has a link to a foundation http://www.hughes-syndrome.org/overview.htmNHS Direct also has some information. Althought your employee's GP has only mnetioned a DSE assessment i.e. get one I think it might be benefical to get some more medical advice. Do you have an Occ health provider? Can your employee get advice via their GP to an Occ Therapist? As H&S people we're often asked things where we need to consult other professionals to get the full picture. The NHS Direct advice implies that when treatment starts that it is quite effective. However, I think you're on the right lines about having more, or ensuring that they are taking, breaks and moving etc. I hope this helps you Lilian
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Posted By Chris G
As someone who suffers from this condition & a significant DSE user, I find that so long as my long term medication is managed (Warfrin)to maintain my INR between 2 and 3, i have no problems with DSE. The company standard that all work to here is suitable. The problem would be if a persons condition was not under control, in which case they are likely to be off work ill, as Hospitals tend to get the condition controlled before discharging the patient.
Chris G
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Posted By Simon Sexton Hi Guys, Thanks for the responses. Having spoken to the User in question, it all seems pretty self explanatory. Information has been passed from his medical consultant direct to the Office Services Dept (which as a lowly H&S Consultant I was unaware of) which pretty much mirrors the recommendations made in the discussion that we've been having. Having done some further research, I am under the impression that Lupus can cause sore joints which may be something to consider. Also the eyes can be effected - sore, red etc. See http://www.faqs.org/health/Sick-V3/Lupus.html if you're interested. Clearly the User in question is in the early stages and as such reports no associated discomfort but the case will be regularly reviewed. Thanks v much everyone! Si
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